February 20, 2019 Comments Closed

JW’s Hope~Epilepsy Walk & 5K

Posted by:cowboyrunning onFebruary 20, 2019

May 4, 2019 all-day
Tuttle Creek State Park River Pond
5800 A River Pond Rd.
KS 66502
Kendra Lister
JW's Hope~Epilepsy Walk & 5K @ Tuttle Creek State Park River Pond

JW’s Epilepsy Walk began 7 years ago to raise epilepsy awareness. JW Lister is 10 years old and began having seizures at 23 months. He was diagnosed with epilepsy and getting his seizures controlled and understanding the disorder was a struggle. In 2013, we found a wonderful epileptologist at the Cleveland Clinic that studied JW’s case thoroughly. The new treatment kept JW seizure free for over 3 years. Three Novembers ago he had a breakthrough seizure, which proves the sad reality that there is no cure for epilepsy. Even with the break through seizure, we are still very thankful that JW’s EEG’s are normal and he does not have to take daily medication. 1 in 26 people have had seizures and at least 70% live with uncontrolled seizures. Epilepsy is a highly complex disorder and sadly, 30% will never find the cause. Please help us raise awareness right here in our community by participating in our 7th annual 1 mile walk and 5k on May 4, 2019. All of our proceeds will help epilepsy fighters through the Chelsea Hutchison Foundation (http://www.chelseahutchisonfoundation.org/). When JW’s seizures were at their worst, they granted us a bed monitor to detect seizures while sleeping. They also fund other alerting devices, seizure response dogs and provide support for families fighting epilepsy. This foundation was a blessing to us when we were lost and looking for support. Last year we were able to help a local family with two monitors and our donation was the largest to date, $3,500. Please invite your friends and family to run and/or walk with us and help other epilepsy fighters.

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