JW Lister is 9 years old and began having seizures at 23 months. He has epilepsy and getting his seizures controlled and understanding epilepsy was a struggle. In 2013, we found a wonderful epileptologist at the Cleveland Clinic that studied JW’s case thoroughly. The new treatment kept JW seizure free for over 3 years. Two Novembers ago he had a breakthrough seizure, which proves the sad reality that there is no cure for epilepsy. Even with the break through seizure, we are still very thankful that JW’s EEG’s are normal and he does not have to take daily medication. 1 in 26 people have had seizures and at least 70% live with uncontrolled seizures. Epilepsy is a highly complex disorder and sadly, 30% will never find the cause. Please help us raise awareness right here in our community by participating in our 6th annual 1 mile walk and 5k on April 28, 2017. All of our proceeds will help epilepsy fighters through the Chelsea Hutchison Foundation (http://www.chelseahutchisonfoundation.org/). When JW’s seizures were at their worst, they granted us a bed monitor to detect seizures while sleeping. They also fund other alerting devices, seizure response dogs and provide support for families fighting epilepsy. This foundation was a blessing to us when we were lost and looking for support. Last year we were able to help 3 families including a local family. Please invite your friends and family to run and/or walk with us and help other epilepsy fighters.
Shirt pickup will begin at 9:00. Entry fee is $15 for the 1 mile walk or $20 for the 5K/1 mile combo. The registration fee for families of 5 or more will be $50. The 5 K will be unofficially timed. At the gatehouse you will need to mention you are there for this event and they will waive the parking fee. This year, weather permitting, we will meet at the starting line in front of the green playground next to the restrooms. The 5k start time will be 9:30 with the 1 mile starting at 10:30. Visit www.jwshope.com to register online or to access a printable form to mail in.